Clinical Practice Guidelines

Medical Care for Adults Living with Cerebral Palsy: A Clinical Practice Guideline

The guidelines will take a preventative care approach to establishing a standard of care for adults with cerebral palsy. Before guidelines can collectively be published, we will publish a systematic review for each of 10 focus areas.

FOCUS AREAS:

  • PAIN

  • MUSCULOSKELETAL HEALTH

  • GASTROINTESTINAL & LIVER HEALTH

  • ENDOCRINE HEALTH & NUTRITION

  • MENTAL HEALTH

  • SEXUAL & REPRODUCTIVE HEALTH

  • NEUROLOGICAL & COGNITIVE HEALTH

  • CARDIOMETABOLIC HEALTH

  • RESPIRATORY HEALTH

  • UROLOGICAL & RENAL HEALTH

published systematic reviews

Pain in adults

with cerebral palsy:

a systematic review

Lead Author:
JENNIFER RYAN
Director, CP Life Research Center
Royal College of Surgeons Ireland

Your community feedback tells us…

74%

Experience pain

58%

Aren’t receiving adequate care

ADDITIONAL
RESOURCES

Reframing Cerebral Palsy as a Lifelong Disability

Dr. Mark Peterson
New England Journal
of Medicine, Nov. 2024

CPGU The Podcast: Episode 5 with Dr. Mark Peterson &
Dr. Jennifer Ryan

LEARN MORE ON INSTAGRAM

This powerful NEJM piece by Dr. Mark Peterson reframes CP as the lifelong disability we know it is. We break it down for you here but you can access the full text at cerebralpalsygrowsup.org.
The first systematic review that will inform the development of our clinical practice guidelines has been published! Swipe through to learn more about what we found. Visit the link in our bio and in stories for more info, access to the full text arti
The first systematic review that will inform the development of our clinical practice guidelines has been published! Swipe through to learn more about our process and what we set out to find out about pain in adults with cerebral palsy. Visit the lin
We feel like we can’t say it enough, CPGU has been community-led from the very beginning! In 2022, over 1000 adults with CP responded to a survey used to determine the focus areas for our clinical practice guidelines. We asked questions about
In case you missed it! Our live virtual event on April 8th, 2025 is now available for replay. Join Dr. Mark Peterson, Ashley Harris Whaley, and Katy Gaastra as they give an overview of the CPGU project, the research landscape for adults with CP, and
What is a systematic review, and why do they matter? Take a look at this explainer that dives into what a systematic review is. We’re publishing 10 of these reviews across 10 focus areas as a part of the process of developing clinical practice
Cerebral Palsy Grows Up merch is HERE! Our summer 2025 collection launches today. Get your tee at the link in our bio and in stories!
Today is the day! Last call for registration for our free live virtual CPGU in Conversation event at 6pm EDT. Sign up to join us at the link in our bio and in stories!
CPGU has a lot on the horizon this year! Our work on Medical Care of Adults Living with Cerebral Palsy: A Clinical Practice Guideline is already underway across ten community chosen focus areas. Tune in to our first live virtual event CPGU In Conve
Only 1 spot left! Are you an adult with CP? Does your CP impact your speech and use of voice assistants? We’re recruiting for a paid survey opportunity. Comment “yes” for more details. Open to US residents. Those living in Texa